He underscored that they must work together to create nation where everyone, no matter their medical condition have access to proper diagnosis, treatment and care.

“As a nation, we must work together to ensure that every person, no matter their medical condition, is granted the same level of dignity and access to healthcare. It is our responsibility to provide the necessary sup­port, resources, and care to those living with rare diseases in Ghana,” he explained.

The Chief Director made the call at the launch of Rare Disease Day 2025, organised by the Rare Disease Ghana Initiative (RDGI) in Accra last Friday.

Rare Disease Day is an observance held on the last day of February to raise aware­ness for rare diseases and improve access to treatment and medical representation for in­dividuals with rare diseases and their families.

The date is chosen because in leap years, it is February 29, the rarest date.

This year’s observation is on the theme: ‘More Than You Can Imagine,” as a call to action for patients, caregivers, advocates, healthcare professionals, policymakers, and industry alike.

Rare disease includes; Alice in the Won­derland Syndrome, Epidermolysis bullosa, Muscular Dystrophy, Cystic Fibrosis, He­mophilia, Huntington’s disease, Spina Bifida, among others.

Alhaji Adam assured that the MoH was committed to addressing the challenges faced by persons living with rare diseases in the country.

“We are currently working on strength­ening our healthcare system to ensure that everyone has access to the necessary medical services, including those living with rare diseases,” he assured.

He reaffirm the Ministry’s commitment to improving the health of all Ghanaians, including the lives of those living with rare diseases.

Alhaji Adam noted that MoH acknowledg­es the plight and challenges of persons living with rare disease and hope that they could address their needs under the current Na­tional Health Policy which promotes equity, inclusion and collaboration among various stakeholders and the Universal Health Cov­erage (UHC) Roadmap of “Leaving No One Behind”.

He commended RDGI for its contribu­tions towards addressing rare disease issues in the country since its establishment in 2018.

The Executive Director of RDGI, Mr Samuel Agyei Wiafe, highlighted that rare diseases affect millions of people around the world, with over 300 million individuals affected globally, including many Ghanaians.

He said many rare diseases were genetic in origin and affect mostly children.

Due to lack of awareness and resources, he indicated, majority of persons living with rare disease have limited access to proper diagnosis, treatment and care which was worrisome.

“As a non-governmental advocacy or­ganisation, we have been working tirelessly since we joined the campaign in 2018 to raise awareness and support for individuals and families affected by rare diseases in Ghana,” he said.

On the sidelines of the launch, RDGI later illuminated the building of MOH in a symbolic gesture of solidarity to mark Rare Disease Day.